So Loved...

I have said many times how much I LOVE my church. They have done so much for us. They are the most giving people I have ever seen.
Growing up I did not have a church family. The family I was VERY close to I lost. My brother got killed and then my grandparents died. We barely ever went to church. I always prayed and I always knew God, but not like I do now. The amazing thing is I always prayed. I prayed for others and I prayed many times for myself.
I now have something I have never had. I feel like I have so many people that love me, Wesley, and our children. It is an amazing feeling.
The most important thing is; God is amazing and I know that. I know that God loves me so much. He is working in my life everyday.
Today our church family collected money to help with our financial medical burden. I am still beyond words at how giving my brothers and sisters in Christ are. They collected more then I could had ever dreamed. This money is going to help us so much.
We were in bad shape. I am so thankful and I feel so loved.

Kyra and Wesley both had a rough day today. Kyra's MRI is tomorrow. Kyra is so beautiful, so loving, it rips at my heart to see her in pain. I am praying that we get good results tomorrow. I am praying that God guides our decisions and gives us comfort.
I truely believe this is God working. There is a reason Kyra's Chiari was found early. She is going to be treated and healed. She will not have to suffer like Wesley. Wesley is going to have to suffer the rest of her life. Hopefully he gets somewhat better, but the reality is, he will never be totally healthly. Kyra has her whole life ahead of her, when we do perform surgery and we know we will have too; this is going to give her a new chance. God prepared us through Wesley. Wesley is so thankful that it has worked out like it had. We are so educated now and do not feel like we are going into this blind. Even though we want the very best for Kyra and do not want her to have brain surgery, we know God is in control and time will tell.
Will update tomorrow. Goodnight.

Another Weekend Gone..

It amazes me how the days fly by. I will start with saying I am getting closer and closer to having a teenager. Haley will be 12 in a little over a month, she already acts like she is 16 and many think she looks a lot older then she is. Scary and probably not a good thing. She is at the stage that I had hoped would not happen. "Mom is no longer cool".
Friday night she had a friend spend the night. On Saturday we had a little shopping that needed to be done, so me, Haley, and her friend went. In my mind, I was thinking this will be fun. In their mind, "woo hoo, we have a ride to the store and then we can run away from her and pretend that we are grown". While I was at one end of the store, they were at the other looking. When we all met up to leave, I had put a Bra in the cart for me. It was light blue and cream with very small polka dots. Haley says, "Oh my gosh Mom; mothers do not where bra that have polka dots on them" Can we say, "What not to wear".
The day has came, "Mom is no longer cool". *sigh* Thats ok, she loves me. :)

I am so tired tonight, church is going to come early.
I ask that you please pray that we get good results on Kyra, Monday. Please pray that the Lord guides us in the decision that will have to be made. Kyra felt bad today and it just breaks my heart when she can not play. I do not want her to deal with this her whole life, I do not want her to get worse. I also do not want to put her through brain surgery. Please say a prayer.
Love to All :)

Kyra's MRI

Her Spine MRI will be Monday Feb. 1st. We will be seeing the surgeon later that day. At that time we will make a decision depending on the MRI. Please pray the MRI comes back fine. At this point we do not want to put her through surgery unless we have too.
I will update more later.

PUSH

I can not take credit for this. A friend posted it on facebook, but I like it.
PUSH
P- Pray
U- Until
S- Something
H- Happens

I like this. You must always keep praying. God hears us. What we pray for might now always happen or when it does it will be in God's timing. But, we must pray.
"God's timing is not always great, but we MUST trust in him"

Tomorrow I am entering into a career opportunity, not sure where it will lead. I feel the time is not great. If it is meant to happen it will, but I feel I need to take this chance and see. For me and our family.

I am feeling a little better today. Still hurts to swollow. Maybe I am losing some weight :)

Back in Action

Been away from my blog. One thing after another.
I have not had strep throat since I was a kid, well guess what I have strep throat. No one else has had it so far. It about kicked my butt. I still do not feel good. I went to the Dr. this morning and got some medicine.
Wesley took off tonight to help me, not to mention he has only had two hours of sleep. I am telling you, when the MOM is sick everything falls apart.
I think by tomorrow, I will be so much better.
Other then that it has been business as usual around here. Kyra did not feel well on Sunday. Wesley did not feel well on Sunday. He felt a bit better on Monday.
As you can see Business as Usual!
Thats all I have for now. :)

Awww.. The Weekend.

We slept in today and it was nice. I am very lucky, usually my kids sleep until 8:00, but even then they just get up and turn cartoons on and let me sleep. Well, until they are hungry.
Remember a few weeks ago, I showed me painting the hallway. Guess what, it is still not done. Ha! I am getting it done today, promise. Maybe I should not promise, but it is on my to do list. First, I have a double baby shower that I am helping with. How exciting!!

The last few days have been hard and that would be why you have not seen much of a post. Me and Wesley (especially Wesley), have really taken the news about Kyra hard. I am feeling a lot better. I see God working everyday. The insurance is working on the MRI, so they say. Ugh. I should hear something on Monday. I seem to be in no hurry, even though I should be. In a hidden way, I do not want to know, but I know we have too. She is doing pretty well. A few issues, but nothing really bad.
Wesley was sick yesterday. We know there will be days like that. :(

Update on prayer list:
* Bobby (my aunts husband) is still in ICU, but doing as well as expected. The tumor was removed, and the cancer had not spread. PRAISE GOD!! Now, time will tell.
* Choweta (Wesley's aunts mother), had her neck surgery and her back surgery is next week. She is doing as well as expected with everything she has been through. PRAISE GOD!
* Wesley's mother is doing much better. She really scared us. I talked to her yesterday and she sounded so good.
God is amazing. Hearing all the good news has really made me feel better. It is so easy to really get down when so many around you are suffering.
Thank you for your prayers.

My career door is still open and I will know more soon. I feel like this may not be the best time, but God is in control if that. Last night, I was thinking. "God, this is not really a good time, but I have been telling you, that I am putting it in your hands and what happens will happen". Well, your hands are open and I am moving forward. Time will tell.
Everyone have a great Saturday.

We are Ok

I feel better today. Actually I really think I took everything better then I had feared. I want to "heal" Kyra so bad. I would take Chiari anyday, if that meant none of my children would have it. Wesley would take another brain surgery, if that meant the children would not have it. Only God can heal.
Two years ago our life seemed perfect. It is amazing what can happen in a course of two years. I would had never imagined that we would go through a trial like this. Really, through all the bad I see God working in our life everyday.
Does this mean I am not sad, NO; I am very sad. I have cried and cried. Just looking at Kyra, I cry. It breaks my heart. I do not want to put her through surgery. NO, I do not. If she has the fluid on her spine, my heart will break. Because then we have no option. I am not for sure we have much of an option anyway. But, right now I want to keep Kyra just like she is. With that being said, I do not know what will happen.
We are waiting on insurance, we should hear tomorrow when the MRI of her spine will be. I pray so hard that there is no fluid on her spine, because then at least we have options.

I do ask that you say a prayer for Wesley. He is not taking this well. He is scared to death that she will have a complication like he did. He does not want to put her through surgery. It is breaking his heart. Right now, we can not even talk without shedding tears.

Kyra had a good day! Here are two of my cuties.

Sweet Kyra

What a long day and Kyra was such a trooper. We did not get the news we wanted. The Dr. says she needs surgery. Her Chiari is actually worse then we thought. Her CSF fluid is starting to get blocked. It was moderate. There are signs that she may be collecting fluid on her spine. She will be having a MRI done of her spine very soon. If she has fluid on her spine, there is nothing to consider she has to have surgery ASAP. If there is no fluid, then the decision is up in the air. She will only get worse with time. The Dr. already wants it on the books, we are thinking and praying; also waiting on the next MRI. Wesley does not want to believe this, he is so scared that she will end up like him. We are very saddened. We will know more after the next MRI. My heart just breaks.

She was such a trooper today. So happy! She has no clue whats going on.

Prayer Requests

Thank you for lifting Choweta and Bobby up in your prayers.
Choweta had her neck surgery this morning and it went well. She has one more surgery to go and a long recovery.

Bobby has brain cancer. At this time we do not know if it has spread. The tumor is very big. We do not know what the next step is. He needs prayers from all over. Life him up.
His wife (my aunt), Bev is taking this very hard. Right now he is in ICU at Baylor. I can say I know what she is going through right now, but really I do not. This is so much worse then anyone should ever have to endure.
My heart is so heavy. I want to do something to help them, but feel helpless. I remember when Wesley was in the ICU. I slept on a table and chair surround by others doing the same thing. It was such a depressing place. I have never felt so alone and sad. I only got to see him during certain times and ever time I had I was in there. He did not know where he was, he was so sick. When I would go in he would open his eyes; as if he could smell my scent or he just knew I was there. I really believe thats what got me through, besides God. When the Dr. told me, 24 more hours and he would had died; I wondered why he told me that. But, right then and there I made an agreement with God and myself that I was going to be strong and I was not giving up.
So,my heart breaks for my aunt. Please remember them in your prayers.
Love you all!

The Truth

This explains Chiari to a Tee. Wesley is one of the unlucky ones. This was taken from:
http://www.chiariansunite.org/apps/photos/

Some of us sport hardware (wheelchairs, braces, etc) but most of us don’t. We look like everyone else. This is what they call an invisible disability – There is no outward sign saying we are in pain.

Chiari pain is often chronic, and for some of us it is acute chronic pain. There is no magic pill to take to make the pain go away, yet we trudge forward each day choosing to smile and laugh even though we want to scream out in pain. Over time, we learn to go forward as life doesn’t stop even when we wish it would for a moment. We make choices every day of what we can and cannot do. Sometimes, our choice is to do something we know we will pay for dearly later … but we do it anyway just for the experience of enjoyment, if only for a short time.

Some Chiarians are lucky enough that surgery works to eliminate the pain (very small percentage) … For most of us, pain is reduced to a more tolerable level … While others find no relief at all. Doctors are too fearful of the "prescription abuse" stigma, so few of us truly find any relief. We are stuck in a world full of pain and frustration with no end in sight … and yet in the photos below you will see us SMILE!

So the next time you see one of us, please understand the energy it takes to smile, laugh, and PRETEND life is normal, when in fact, most of us want to curl up in a bed and cry!

Comments

I appreciate everyone's comments, infact I love getting them. I love leaving comments too; on other blogs. I was really bothered by a comment today. I am not for sure who it was from and I do not care.
I was told to be Positive. Let me say that I feel like I have done a pretty darn good job of being positive through the past two years. I was also told that there is LIFE after Chiari and that it can be FIXED. In most cases YES, it can be fixed. But that does not mean that your symptoms are gone.Infact FIXED, means patching your brain back up, which helps deal with the symptoms. There are over 80 symptoms that can come with Chiari. There is no CURE. In some cases like my husband, he will always live with Chiari problems. Yes, there is LIFE after Chiari. I have always said that things could always be worse.
I hope whoever you are that your Chiari was FIXED and that you are 100% without any lasting symptoms. My husband is not and we were told by one of the number one surgeons in the US that he will never be.He is also dependent on a shunt, thanks to Chiari. That is far from not being positive. That is reality. The POSITIVE in me, knows that we will be fine. My husband makes the best out of everyday. He is a trooper and I am so proud of him. We thank GOD everyday.
Off that soap box.

Things are a little touchy tonight. My heart is very heavy. My aunts husband, Bobby Gunn just found out that he has a massive brain tumor. We now know it is bleeding. He is being transported to a hospital in the Dallas area. Thats all we know right now. Please lift him up in prayer.

I had posted a few days ago about Wesley's aunt, her mother (Choweta), that was in the car accident. She is having surgery tomorrow on her neck. She seems to be improving a little everyday. She still has a long road ahead of her.

Before Wesley got sick I never realized what power there is in prayer. I know from personal experience that there is great POWER in prayer. Please lift Bobby up in prayer and please continue to pray for Choweta.
My prayers have become very long. There are so many suffering. I lift each and everyone up. Because I know that PRAYER works.

Tuesday

I remember a month ago thinking Jan. 19th would never get here. Well, it is almost here and the time has flown by. I have been so ready to go and find out exactly what we are looking at and what everything means. But, now that the time is here, I am not sure that I even want to know now. Does that make sense? We know the reality, we have to find out. There is a huge chance that we get good news, but there is that part of me that is so scared to get bad news or news that I am not ready to hear.
Look what Kyra made tonight. She has learned to write her name. She is getting really good at it and she loves to draw.


I think I have about waited as long as I can. I need to see an oral surgeon to get my wisdom teeth removed. Really, I just have no time to spend on me or money. And, the thought of me being down scares me. But, my teeth are really hurting. That is on my to do list this week. An appt. to see what needs to be done. Or I should say, how much will it set us back, I already know what they will do.

Me and Wesley were going to go out Friday evening and eat. Have a much needed date. Friday was not a good day. He was sick with a bad headache, worse since surgery. But, today he was better. So we did get out and have a date. Thank You Mom for watching the kids and thank you Haley for helping.

Love My Children

I have been counting my blessings. There seems to be so many right now that are sick, and the horrible earthquake in Haiti. Breaks my heart. Everything. Makes us really realize how precious life is and makes me realize how blessed I am.
I would like to share how you can help with the efforts in Haiti.

www.Compassion.com

Compassion is a group I am researching and learning more about. I want to become more involved with compassion.
Compassion International exists as a Christian child advocacy ministry that releases children from spiritual, economic, social and physical poverty and enables them to become responsible, fulfilled Christian adults.
Founded by the Rev. Everett Swanson in 1952, Compassion began providing Korean War orphans with food, shelter, education and health care, as well as Christian training.
Today, Compassion helps more than 1 million children in 25 countries

The Carpet is Gone

The carpet is gone, well half of it. Our bedroom is just lovely. NOT. The insurance man is coming tomorrow. I am afaird the damage will not out weight the deductible, but it is worth a try. If anything we are living with half concrete until we can afford to get new carpet in that room. Here is half of it.


My sweet Kyra has had a hard day today. She has had a headache. She keeps telling me she is going to throw up but she never does. I almost wonder if she is sick to her tummy and thats her way of explaining how it feels. Know what I mean? She has off and on just been laying around today. She also has a black eye, that we have no clue how she got. Maybe breanna hit her, hehe. I do not know. It is not totally black. Just some under her eye.


I am asking all my prayers warriors to say a prayer tonight; Wesley aunt (her mother), Choweta Kimball was in a car accident and was carelifted to Parkland. She had her grandchildren with her that she is in the process of adopting. They were not severly hurt, but Choweta really needs prayers. She is looking at a very long recovery. Please pray for Wesley's aunt Charla, uncle Mike, and cousin Chelesa as they care for the children and go back and forth to the hospital. They have such strong faith, I know God will get them all through this time.

I do not have anything to report on my career door that opened. It seems everytime I think I may get to go back to work, we have a bad day and then I wonder how and the world do I think I will work. But, money does not grow on trees. All I can continue to do is pray. We will see.

Doors Open and Doors Close

God is amazing. You never know when God will open a door or when one will close. Today as door has open for me. Thats all I can say right now. But, I ask that you say a prayer for me. If this door is meant to close it will. If it is meant to stay open it will. I just want to make up my mind about my career and this door will help. :)

So, our bedroom was flooded. I was not going to call the insurance company, because I figured the deductible would out way the damage. Well, maybe I have changed my mind. It ruined the carpet. The smell is so bad. I am sleeping with Haley tonight :)
In the morning I am calling the insurance company. Ugh.. We will see. Another thing to mess with.

Wesley is back at work on light duy. This was his second night. He is doing pretty well. Are his headaches gone? NO. We think the pressure settings need to be changed. But, right now it is not bad enough to call the Dr. So he plans to wait the three months. Basically, give it more time. A week from Kyra's appt. So ready to KNOW. I just want to know what we are looking at . Good or bad.

Mornings

Am I the only one that has a rough time in the mornings? Ugh.. I am not a morning person, either are half my children. The combination does not mix. It never fails that we forget something and then that wears on me all day. I just can not get it together in the mornings, no matter what I do. I can not imagine when I start working, how it will be. HAHA. Really not funny!!

Productive Saturday

My plans today were to have a very productive Saturday. At the end of the day I did. But, the day started with a pipe that froze and water flooded our bedroom. Happening about 9am and at 10:30pm we are still getting water up. Fun!! It has been happening to a lot of people. It is just so COLD. It could have flooded the whole house, so I should not complain.
I decided last night that I going to start a painting project. My plans were to repaint the hallway and redo my pictures and do some different decorating. It took about four hours and Haley helping me, but we got it painted. Not near being finished, with my decorating, but when I am you will see pictures.

Even though the day started rough, I ended up getting a lot done. YAY me.

Wesley has had a pretty good day today. If he just start getting sleep at night, I think he will feel even better. One day at a time! Right?
Kyra felt bad this morning, but got better as the day went along.

I need you all to say a prayer for me. I have really been asking God to lead me in the first direction. I need to start working bad. You all know from previous posts that I have really been struggling with what direction to go with. Teaching, or Social Work. Or any job I can get.
A job came up that I have applied for. I am not positive that I want it. I need God to help me. It is good money, but will be more hours and stress then I am really wanting. My finger prints should be back this week and I can start subbing. I just do not know how much work it will bring. Or income! Just not for sure what I need to be doing. We will see. All I do is pray and see what happens next.

So Cold

I wonder the last time it was this cold in Texas. It has to be some kind of record. Wind Chill this morning was -2. I am not liking it at all. It is such a task to bundle all the kids up to get out of the house. Such a pain. Come on, Spring!!
It seems that all I want to do is sleep. I stay cold, I can not get warm. I have not been able to get motivated this week at all.

Wesley is doing a little better. Still having headaches, but they seem to be maybe getting better. So maybe it is just taking time for his body to get used to it. Fingers still crossed.
Kyra had a head and neck ache yesterday. First one she has had in a while. The 19th is getting closer.

I have received several e-mails of people with Chiari. I am so glad. We can all learn from each other. I promise to get caught up on e-mails tomorrow. Please keep passing our blog and please do keep in touch with me. I have been praying for many of you. I have some ideals that I am sorting through. I have so much concerning Chiari that I want to do, just not for sure how to do it all yet.

The Day Marches On!

Wesley stayed out of the ER. YAY for him. The last 24 hours he has been sick. Headache, throwing up, the whole nine yards. I called the Dr. today. He says it will take a few weeks for his body to get adjusted to the new shunt. I sure hope he is right and this is not a sign of things to come. All we can do is take one day at a time. I feel a little better today. Just been pretty emotional and I have been very tired. This weather is not helping either.

Me and the kids got out and went to church tonight. That felt good. I am so blessed by our church. I just LOVE all the members and I LOVE going.

Tonight when we got home the little girls took a bath and got their PJ's on. Breanna had some little house shoes on. Well after getting them to bed, Haley went into her room to find that someone had gotten into her clarinet case and threw everything around. Haley comes to tell me and says, "I think I know who did this, I found these little house shoes that someone left as evidence". It was so CUTE. I just laughed. Breanna thought she got by with it, but did not think about the fact that she left evidence behind. HEHE. Everything was picked up and at least she did not break anything.

I have more I would like to post, but my eyes are telling me to hit the hay. Come back tomorrow for more :) Goodnight!!

A Good Cry

Does that make anyone feel better? You know what, I think I can barely cry anymore. Is that possible? I am going to be honest, I told God tonight that I am not for sure what to even say anymore.
Wesley has been doing pretty well. Just a few minor headaches. The thing with Chiari is, you can be fine one min. and sicker then a dog the next. Tonight he started getting a "bad" headache again and feels like throwing up. He has taken a lot of medicine so far nothing. We are just hoping we stay out of the ER tonight. Who knows what has caused this. Did he do to much? Is it the shunt? Or is it just a Chiari headache that we know he will get from time to time? Ugh.. Thats what is hard.We feel like we have tried everything. I am sure there are things we have not tried, but we feel like our heads are spinning. What have we done? What have we not done? It all mixes together.
I can not even explain the stress this brings to the table. As he put it tonight, "he sits in his chair and wants to spend time with his wife and can not even move out of the chair because he hurts so bad".
I feel like it is just a Chiari headache and we know he will have those from time to time.Wesley will be ok, I know that. But, I guess it boils down to the fact that we are just sick and tired of him having bad nights.

I had someone ask how I am able to blog how I feel for the world to see. This is why. I am not going to pretend that our life is peaches and cream. This is real. This is what a blog is for. It is like a diary. I am not a fake person and I am not going to pretend that nothing is wrong. Wesley does enough of that for both of us. I also want people to know that it is normal to feel up and down. I do know that I am normal. HEHE. Tomorrow I will feel better. I never loose my faith. But, yes I have nights like this when I am upset and really ask God, "WHY"! What am I supose to do? Please lead me and give me strength. It will be ok.

I also know that this little angel is going to be ok.

I love this picture. She looks so happy and full of energy. You would never know anything is wrong with her.

Stitches

Today was the only day that Wesley's Dr. could take out the stitches and see him, so Wesley headed down and got them removed. He said it hurt. Ouch. Hurts me just looking at it. He discussed with the Dr. that he has had a few headaches, but nothing like he used to. The Dr. stated that he thinks the settings will have to be adjusted some, but he wants to give it three months. As long as he does not get worse or the headaches do not get more often, then he goes back in three months and we will see.
Actually feels weird. Three months without having to go to the Dr. Feels great. We are both feeling very positive this time. We know he will have to have another revision over time, but we will take what we can get. If he is well for a year, then that is GREAT. We will take what God gives us.
I can not wait until Kyra's appt. on the 19th. I am really worried about her.
I must get into bed. We are going to see Wesley's mother tomorrow. Thank you all for your prayers regarding her. She is back home and slowly getting better. Praise God!!

A Sour Attitude

I had a sour attitude today towards Wesley and I regret it now. Yes, I said I was sorry. Let me first say that my knee hurts. I fall today at church and hurt my knee. Yes, I fall. On my face, in front of people. If you did not see it you are hearing about it now. Kyra was standing behind me and I fall over her. I had high heels on and could not keep my balance, so on the ground I went. There, my sour mood started.

It does not bother me to tell everyone that I have bad days. I can have a sour attitude. I am not perfect, by any means. I say this because I want others to read it and know that it is ok to have a bad day. No one is perfect. Me and Wesley do not have a A+ marriage. We try and I think we are doing a very good job, but we have bad days too.

Today I was sour and yes it was my fault. Not for sure that I have exactly admitted that to him yet, but I did say I was sorry. I got upset because he had said he would go to church. We go to Sunday School and then he usually meets us there for church. Well today he over slept. Because he stays up half the night and then sleeps half the day. Granted he has sleeping issues and he is in pain. I know, I should understand. So, that upset me. Then I wanted us all to go eat as a family. Nope, he was not hungey. Then, we get home and he just lays in his chair and I could feel steam coming out of my ears. LOL. I went to Wal-Mart to get some milk and cooled off. Yes, I am telling you all this. I had no reason to be upset with him, he just had brain surgery. What do I expect? I feel terrible now. But, this is what it comes down too. I am tired of it just being me and the kids. Everywhere I go. Handling four kids by yourself is a task. Today, it just hit me the wrong way. I think when you are tired and worn down, small things really bother you more then normal. That happen to me today. But, all is good. He understands and has forgiven me. Life goes on!

The kids go back to school tomorrow. Really, I am not happy. That means the mornings become CRAZY again. I am really hoping I start landing some subbing jobs. I have got to start studding. Today was not the day to embark on that. Since I was sour and all ;)

Praying God's Word

Patience to wait does not come from suffering long for what we lack but from sitting long in what we have.

I am trying to stick with one of my goals. I have been doing my daily bible readings and I am reading Praying God's Word by Beth Moore. I may include in my blog some of what I read. I just want to give more of my time to God. I think we all get so wrapped up in everyday life that we let the important things slip. I know I do anyway.

Today I took the kids to Chuck E Cheese. 4 kids, a Saturday, by myself, at Chuck E Cheese. I thought maybe I was crazy, but it really was not that bad. The kids had a blast. One last thing before school starts back on Monday.

I am feeling like I may have stuck my foot in my mouth last night. Wesley got a bad headache late last night and did not sleep well. The headache has continued today. He has not felt well today. Has felt sick to his stomach, just the same old Chiari crap. We know and have came to terms with the fact that he will have bad days. Everyday will not be great. But, I will admit, I do not know what he is thinking. But, I can not help but be a bit scared. Please, is this going to continue again, EVERYDAY? One HUGE positive is the shunt he has in now; the pressure settings can be changed. So, by the time he goes back to the Dr. in a week, he may just need the settings changed. The Dr. did say it could take weeks to get the setting exactly how they need to be. We will see. I tell myself every morning, "one day at a time". I would be totally lieing if I said it was not a bit depressing, because it is. I looked around at Chuck E Cheese today and so many kids had their dads there playing with them. Wesley felt to bad to go. It is hard to explain, but somedays it is very depressing. But, so far day 2 of 2010 and I am staying very positive and having the attitude I want to have.

On another note. I have had a few e-mail me regarding Chiari. I am so thrilled that my blog is getting around. I will help anyone in anyway I can. I am no Dr. or expert, but I will try and give support. We can BEAT Chiari together. If you are e-mailing me or if you have left me a comment, please leave your e-mail so that I can contact you. :)

The New Year

Here in the Bounds House the New Year is starting off well. Wesley is doing good. Still sore, but thats to be expected. So far, headaches seem to be doing good. His head is so sore, it is hard to tell. I just really feel like deep down that this was it. He is going to be well for a long while. Of course we know that with Chiari he will have a bad day here and there, but overall I am feeling very positive.
I do have to admit that I am very scared about Kyra. I am really looking forward to her appt., so I can get some more information and really find out what we are looking at. I think no matter what that 2010 is going to be better. If anything I have grown so much in 2009 and became a lot stronger.

Just some helpful information for everyone. Breanna fall tonight and took a chunk into her tongue. Just so you know the Dr. said tongues heal theirselves. We talked to him on the phone, just to make sure there was nothing else we needed to go.
Poor baby. But, she is fine now.


Back to business as usual at the Bounds House. Loud Loud and Louder. I would not have it any different. Goodnight All!!

Haley's Letter

Haley wrote this letter in her scrapbook and I wanted to share it with everyone. Yes, I got her permission.

My life is different from a lot of my friends. I have one brother, two sisters, and two parents. I have a dog named Gabby. I love all the gifts that are given to me and I am thankful for what I have. My dads name is Wesley. My dad was diagnosed with Chiari, a rare brain disease in June 2008. He still is struggling with it, but whatever happens we are all giving him love and prayers and we are getting through this together. He is a police officer and he loves his job and loves all of us. My moms name is Kristy, she is a stay at home mom. She almost always takes and picks us up from school. She has done a lot of research on Chiari and knows a lot about it. That is good for all of our questions. My brother's name is Blake, he is a video game addict; he loves Mario games. He is a lot of fun and I could not live without him. My sisters are fun too. My four year old sisters name is Kyra. She was diagnosed with Chiari, just like my dad. Hers is not as bad as my dads, but it is still sad to know that she has it. My two year old sisters name is Breanna. She is cute and loves to play outside. She is the one I usually never fight with, but I love them all equal. I have to say I am unique, you will never find another girl like me.