Friday, February 26, 2010
I Am Ready
I went and met my co workers on Thrusday. God is so amazing and I know I say that over and over. But, I hope and pray that you all know that like I do. I asked God to give me some peace about going back to work. I have been really sad. Sad to leave the kids. Sad and worried about Wesley and Kyra getting worse. Many what ifs!! When I met my co workers and saw my office, I feel so much better. Thank You God. Thank you all for your prayers. Keep a watch on my new journey. :)
Monday, February 22, 2010
Much Needed Update
I am sorry I have not updated. Everyday I try and it has just not been happening. A lot going on at the Bounds house. Let me first give a health update.
Hard for me to give an update on Wesley. I do not want to say he is still not doing well, because I think I can say he is better then he was, but at the same time I can say he is not doing well. Does that make sense? Ugh. It's hard to type because we had hoped he would be better . We now realize he is one of the Chiari Patients that will always live in pain. It may overtime get better. It may get better when the shunt settings are adjusted; only God knows that. But, we are hoping and praying he gets better then he is. But, out of a week now he is only really has a bad day about one day a week. Thats GREAT compared to how he was. So we move on getting used to our new "normal". I am just thanking God that we still have Wesley. I have never shared this because it is hard. When we were in NY, the Dr. told us that another 24 hours, Wesley would had died. Yes, he said that. He said, we were actually so lucky that the infection caused by the fluid leak did not go to his brain. Another 24 hours, he said it would had caused brain damage and then death. God is awesome! He looks over Wesley. So even though he will live in pain, we are just happy he is here.
Kyra has been doing very well. She had a bad day a few days ago and that was the first one in over a week. So, I think it is safe to say she is not getting worse at this point. We can not get her into the Okla. City Dr. right now because of insurance. She is going to be getting on my insurance in three months. At that time we will try and get another opionin. At this point we just take one day at a time. We comfort her if she has a bad day.
We have been very busy. Sports are starting. Haley plays softball. Blake plays baseball. Kyra is also playing this year. Hers is not as big of a deal. They do not start until the end of April and do not play that often. But, three in sports makes for a very busy mommy. But, I love it. I LOVE watching the kids play. Haley finds out Tuesday what team she made and if she gets to play catcher which she is really hoping.
Our carpet is being laid in the bedroom that flooded as I type. We had to take everything out of the bedroom. Can you imagine what my house looks like. Ugh. But, it will be worth it.
Just been busy around here.
I start work in a week. I am very excited, but at the same time I am very sad. I have been crying a lot of tears. I am going to really miss being with the kids.This is going to be the next chapter in our lives. I feel like this job will be perfect for me. I love helping people and I hope I will be able to change a lot of lives. Stay tuned in for our next chapter. I will update as much as I can. Forgive me if I lose tough from time to time.
Please keep praying that Wesley and Kyra stay well and do not get worse. Love to all.
Hard for me to give an update on Wesley. I do not want to say he is still not doing well, because I think I can say he is better then he was, but at the same time I can say he is not doing well. Does that make sense? Ugh. It's hard to type because we had hoped he would be better . We now realize he is one of the Chiari Patients that will always live in pain. It may overtime get better. It may get better when the shunt settings are adjusted; only God knows that. But, we are hoping and praying he gets better then he is. But, out of a week now he is only really has a bad day about one day a week. Thats GREAT compared to how he was. So we move on getting used to our new "normal". I am just thanking God that we still have Wesley. I have never shared this because it is hard. When we were in NY, the Dr. told us that another 24 hours, Wesley would had died. Yes, he said that. He said, we were actually so lucky that the infection caused by the fluid leak did not go to his brain. Another 24 hours, he said it would had caused brain damage and then death. God is awesome! He looks over Wesley. So even though he will live in pain, we are just happy he is here.
Kyra has been doing very well. She had a bad day a few days ago and that was the first one in over a week. So, I think it is safe to say she is not getting worse at this point. We can not get her into the Okla. City Dr. right now because of insurance. She is going to be getting on my insurance in three months. At that time we will try and get another opionin. At this point we just take one day at a time. We comfort her if she has a bad day.
We have been very busy. Sports are starting. Haley plays softball. Blake plays baseball. Kyra is also playing this year. Hers is not as big of a deal. They do not start until the end of April and do not play that often. But, three in sports makes for a very busy mommy. But, I love it. I LOVE watching the kids play. Haley finds out Tuesday what team she made and if she gets to play catcher which she is really hoping.
Our carpet is being laid in the bedroom that flooded as I type. We had to take everything out of the bedroom. Can you imagine what my house looks like. Ugh. But, it will be worth it.
Just been busy around here.
I start work in a week. I am very excited, but at the same time I am very sad. I have been crying a lot of tears. I am going to really miss being with the kids.This is going to be the next chapter in our lives. I feel like this job will be perfect for me. I love helping people and I hope I will be able to change a lot of lives. Stay tuned in for our next chapter. I will update as much as I can. Forgive me if I lose tough from time to time.
Please keep praying that Wesley and Kyra stay well and do not get worse. Love to all.
Tuesday, February 16, 2010
The News Is.....
Meet the new Family Based Safety Service Worker for Child Protective Services. WOW, thats a mouth full. Basically Preventive Care Worker. I begin March 1st.
Let me explain and say I am sorry to keep everyone waiting. I wanted to MAKE sure everything was in line. "My ducks were in a row". They are; I got the offical word today. I went through three phrases first. Which included a test and onsite interview. So this has been going on for over a month. After I got through the phrases. They had to perform driving history, background, etc.
Many know my degree is in Social Work. Which I obtained in 2005. Since then I have been at home with the kids. I have always dreamed of working for CPS. As many bad things that I have heard, and trust me some people have not been on broad with me. But, through that all, it has always been on my heart. The opportunity came up and I applied. I was sick when I went for the interview. I felt like it went HORRIBLE. I was SHOCK to receive a call the following week.
I really questioned God's timing. I have prayed, I have cried. Honestly I am scared! Not working in so long really worries me. So many thoughts go through my head. But, WE decided that I did not need to let this opportunity pass me by. I would REGRET it, if I did not at least give it a try. With that being said I start in under two weeks.
We can use the PAY and I can use the BENEFITS. Many many worries and what if.
More on everything later. I am worn out today. Valentines Party made up fromn Friday. I have ran errands all day.
Let me explain and say I am sorry to keep everyone waiting. I wanted to MAKE sure everything was in line. "My ducks were in a row". They are; I got the offical word today. I went through three phrases first. Which included a test and onsite interview. So this has been going on for over a month. After I got through the phrases. They had to perform driving history, background, etc.
Many know my degree is in Social Work. Which I obtained in 2005. Since then I have been at home with the kids. I have always dreamed of working for CPS. As many bad things that I have heard, and trust me some people have not been on broad with me. But, through that all, it has always been on my heart. The opportunity came up and I applied. I was sick when I went for the interview. I felt like it went HORRIBLE. I was SHOCK to receive a call the following week.
I really questioned God's timing. I have prayed, I have cried. Honestly I am scared! Not working in so long really worries me. So many thoughts go through my head. But, WE decided that I did not need to let this opportunity pass me by. I would REGRET it, if I did not at least give it a try. With that being said I start in under two weeks.
We can use the PAY and I can use the BENEFITS. Many many worries and what if.
More on everything later. I am worn out today. Valentines Party made up fromn Friday. I have ran errands all day.
Thursday, February 11, 2010
Texas-Snow
WOW!! The news is saying it has not snowed like this in 30 years; in a one days time. It is beautiful. School let out early and is starting late tomorrow. I would not be surprised if its not canceled, we will see.
Kyra is finally a little better today. I did not let her play in the snow. Not that she really cared. If it involves; getting hot, getting cold, or getting dirty. You can COUNT Kyra out. LOVE HER. She is just like me. Mini me! Really!!
Breanna was out long enough for Gabby to knock her down and then she was mad. Haley and Blake had a blast!
Enjoying it while it lasts. Will probably not be here for long.
Right before Christmas 2008 our baby Schnazer Boomer got ran over right in front of our house. The kids saw it. It was horribe. We have tried replacing him and just have not found a dog to work for inside like he did. Well we have a new family member. He looks a lot like Boomer and we named him Boomer #2. He has been wonderful. He is full blood Schnazer. Meet Boomer (#2)!
I must add. I know that some of you maybe losing sleep over what my news is. HAHA. NOT! Anyhow, I promise to share every detail very soon. Some loose ends are being tied up. Hold On!! Be patient :)
Kyra is finally a little better today. I did not let her play in the snow. Not that she really cared. If it involves; getting hot, getting cold, or getting dirty. You can COUNT Kyra out. LOVE HER. She is just like me. Mini me! Really!!
Breanna was out long enough for Gabby to knock her down and then she was mad. Haley and Blake had a blast!
Enjoying it while it lasts. Will probably not be here for long.
Right before Christmas 2008 our baby Schnazer Boomer got ran over right in front of our house. The kids saw it. It was horribe. We have tried replacing him and just have not found a dog to work for inside like he did. Well we have a new family member. He looks a lot like Boomer and we named him Boomer #2. He has been wonderful. He is full blood Schnazer. Meet Boomer (#2)!
I must add. I know that some of you maybe losing sleep over what my news is. HAHA. NOT! Anyhow, I promise to share every detail very soon. Some loose ends are being tied up. Hold On!! Be patient :)
Tuesday, February 9, 2010
Peace when you never expect it!
Sometimes things in our life happen and you never really think why it happens. Sometimes you think, "what a pain". But, do you ever try and look at the bright side? I can speak for myself and I do not always look at the bright side. But, I can say I try.
Kyra has been sick. I thought maybe she had strep throat. All the normal signs of strep. I can usually look at their throats and tell if it is strep. I just could not see in hers. So I was weighing between, do I take her to the Dr. or not. Could be strep, could just be a cold. After four kids, I know that if she does not have strep then it just has to run its course.
After four kids I have went to the Dr. MANY times for there to really be nothing wrong. A wasted co-pay and wasted time is what it fault like.
Today felt like wasted money and time. Kyra just has a viral infection. Probably just a bad cold and it has to run its course.
As I was driving home I thought, "Kristy, look at the positive of this visit". God is amazing. God gave me some peace today. I called one of my friends as soon as I figured it out. HEHE
My peace:
When the Dr. walked in our room he says, "Hello. Well, I got the progress report from Kyra's neurosurgeon and I see he wants to do surgery". I said, "Yes he wants to, but we are not going to". "Not at this point anyway". Dr. looks at me and says, "really". So I explain. I felt a lump in my throat. What if he thinks like the surgeon; did we make the wrong decision?
After I explain, he smiles and says, "Kristy, I think you made the right decision".
He explains. Kyra is so young. Yes, her pains cause problems, but they can be maintained and have treatment with medicine. She is not having any BAD signs yet. Which would be passing out, losing vision, etc. I would wait 6 months to a year and she how she is then. Get another MRI in six months and go from there. He goes on to say that he believes the surgeon is excellent. He says when you are a brain surgeon, its like changing a flat tire. No BIG deal. But, to you, he says, it is a big deal. He thinks another opionin is not out of the question. But, for now he says to just keep a close eye on her.
Do you see? I thanked God. I needed to hear that. I needed to hear a man (Kyra's Dr.) that I have known my whole life tell me that not doing surgery at this point is ok. That he agrees with me. I am not questioning myself near as much now.
She is on medicine for her bowels that she will pretty much have to live on. That may get better after surgery, but no promise. Tylenol for headaches at this point.
I want you to think hard of what God has done for you in the last week?
Prayer Request:
Wesley's mother is back in the hospital. Another infection, the Dr.'s think. Tests are being ran. She is not going well. Please include her in your prayers. She has had such a rough time and her body is just not healing like it should be. Thank You
Kyra has been sick. I thought maybe she had strep throat. All the normal signs of strep. I can usually look at their throats and tell if it is strep. I just could not see in hers. So I was weighing between, do I take her to the Dr. or not. Could be strep, could just be a cold. After four kids, I know that if she does not have strep then it just has to run its course.
After four kids I have went to the Dr. MANY times for there to really be nothing wrong. A wasted co-pay and wasted time is what it fault like.
Today felt like wasted money and time. Kyra just has a viral infection. Probably just a bad cold and it has to run its course.
As I was driving home I thought, "Kristy, look at the positive of this visit". God is amazing. God gave me some peace today. I called one of my friends as soon as I figured it out. HEHE
My peace:
When the Dr. walked in our room he says, "Hello. Well, I got the progress report from Kyra's neurosurgeon and I see he wants to do surgery". I said, "Yes he wants to, but we are not going to". "Not at this point anyway". Dr. looks at me and says, "really". So I explain. I felt a lump in my throat. What if he thinks like the surgeon; did we make the wrong decision?
After I explain, he smiles and says, "Kristy, I think you made the right decision".
He explains. Kyra is so young. Yes, her pains cause problems, but they can be maintained and have treatment with medicine. She is not having any BAD signs yet. Which would be passing out, losing vision, etc. I would wait 6 months to a year and she how she is then. Get another MRI in six months and go from there. He goes on to say that he believes the surgeon is excellent. He says when you are a brain surgeon, its like changing a flat tire. No BIG deal. But, to you, he says, it is a big deal. He thinks another opionin is not out of the question. But, for now he says to just keep a close eye on her.
Do you see? I thanked God. I needed to hear that. I needed to hear a man (Kyra's Dr.) that I have known my whole life tell me that not doing surgery at this point is ok. That he agrees with me. I am not questioning myself near as much now.
She is on medicine for her bowels that she will pretty much have to live on. That may get better after surgery, but no promise. Tylenol for headaches at this point.
I want you to think hard of what God has done for you in the last week?
Prayer Request:
Wesley's mother is back in the hospital. Another infection, the Dr.'s think. Tests are being ran. She is not going well. Please include her in your prayers. She has had such a rough time and her body is just not healing like it should be. Thank You
Saturday, February 6, 2010
Blogger Award
A sweet friend of mine gave me a blogger award. My first award by the way! YAY
I need to tell you all 10 things about myself that you may not know.
1. I LOVE to eat chips with melted cheese, and some hot sauce on the top. Yummy. It is a problem, but a problem that I am not ready to stop. It is my treat, I think I deserve it. But my hips and butt probably do not agree. *sigh*
2. My brother died in a car accident when he was 13. That was 12 years ago. I miss him so much.
3. Me and Wesley met in highschool. I was 15 and he was 17. He used to drive me to drivers ed. We have been together ever since. I LOVE him!!
4. I always wanted a lot of children. God granted my wish. :)
5. My favorite drink nowdays is Sweet Ice Tea. Sonic is the best!
6. I have a Bachlors Degree in Social Work. Looks like I was be using it soon. (More to come later) ;)
7. My favorite store is Tar-get.
8. I LOVE to shop. Especially for the little girls. Buying for Haley is not fun anymore; she has to pick everything out herself.
9. I use coupons on everything I can. I save a lot of money doing it too.
10. I am hooked on Young and the Restless. I have taped it for years. I watch them at night when the kids are sleeping. I feel like the cast is my family. *crazy* LOL
There is a little about me. Check back in soon. I have some news. And no I am not pregnant. Everyons seems to think that is always going to be my news. I hate to upset anyone, but no more babies for us. Not coming out of me anyway :)
I need to tell you all 10 things about myself that you may not know.
1. I LOVE to eat chips with melted cheese, and some hot sauce on the top. Yummy. It is a problem, but a problem that I am not ready to stop. It is my treat, I think I deserve it. But my hips and butt probably do not agree. *sigh*
2. My brother died in a car accident when he was 13. That was 12 years ago. I miss him so much.
3. Me and Wesley met in highschool. I was 15 and he was 17. He used to drive me to drivers ed. We have been together ever since. I LOVE him!!
4. I always wanted a lot of children. God granted my wish. :)
5. My favorite drink nowdays is Sweet Ice Tea. Sonic is the best!
6. I have a Bachlors Degree in Social Work. Looks like I was be using it soon. (More to come later) ;)
7. My favorite store is Tar-get.
8. I LOVE to shop. Especially for the little girls. Buying for Haley is not fun anymore; she has to pick everything out herself.
9. I use coupons on everything I can. I save a lot of money doing it too.
10. I am hooked on Young and the Restless. I have taped it for years. I watch them at night when the kids are sleeping. I feel like the cast is my family. *crazy* LOL
There is a little about me. Check back in soon. I have some news. And no I am not pregnant. Everyons seems to think that is always going to be my news. I hate to upset anyone, but no more babies for us. Not coming out of me anyway :)
Thursday, February 4, 2010
Chiari in Children
Chiari I Malformation is a congenital malformation of the skull characterized by a small posterior cranial fossa and impaired spinal fluid flow. The result is a series of chronic and often debilitating symptoms including, but not limited to: headaches, ocular symptoms, otoneurologic symptoms such as vertigo and imbalance, cranial nerve and brain stem disturbances, bowel and or bladder dysfunction and other nonspecific systemic symptoms. This disease and its complications are characterized by remissions and exacerbations, even after surgical repair. This condition is life long and can affect every aspect of one's life.
http://www.chiariansunite.org/
I found this information tonight. I am thinking that Kyra's bladder and bowel issues are Chiari Related. My goal tomorrow is to start the process of getting her into the Dr. in Oklahoma City.
Maybe we have made the wrong decision. Maybe we should do surgery. I do not know. I am putting my faith in God. I am so sad that she is having bladder, bowel, and headaches. But, is it really bad enough to put her through brain surgery? Maybe a second opionin would help.
http://www.chiariansunite.org/
I found this information tonight. I am thinking that Kyra's bladder and bowel issues are Chiari Related. My goal tomorrow is to start the process of getting her into the Dr. in Oklahoma City.
Maybe we have made the wrong decision. Maybe we should do surgery. I do not know. I am putting my faith in God. I am so sad that she is having bladder, bowel, and headaches. But, is it really bad enough to put her through brain surgery? Maybe a second opionin would help.
The Days Move On
I have been trying to do a lot of alone time, thinking, and praying.
Kyra has been doing pretty well this week. She is having bowel and bladder problems. We are not for sure if this is Chiari related or something else. I feel like I still have so many unanswered questions and this is not because I did not ask. It is because the Dr. did not fully answer. I really want to try a Dr. in Okla City. I can not help but worry for her future holds. Thats where God comes in. I have to leave that to him. For the time being, I feel like we are doing the right thing. I have questioned myself for sure. We have a whole new "normal". Everyday is something new. Wesley is hurting or Kyra is hurting. Or both! It breaks my heart: Blake and Haley will say. "If daddy and Kyra feel good can we do this today". Our life has changed before our eyes.
I think how awesome it would be if a cure could be found. Some sort of magic that would make them both well and no need for brain surgery. I think how I could make that happen. That thought is crazy. I can not take on the world, but I can try in someway. I am working on that. Do not feel like I am very far, but I am trying.
I have never heard back from my job opportunity. Not surprised at all. It was not meant to be. It would had been 40 plus hours and I think God knows what I need to be doing. I am on the sub list, so I will continue to do some subbing and see what happens.
Update on Prayer List:
**My aunt husband Bobby. He is out of the hospital. He does have brain cancer and will be starting treatments. He has a long road and really needs our prayers.
**Wesley's aunts mother, Choweta. She had her neck and back surgery and now is in a different hospital doing rehab. She needs our prayers as well. She has a very long road.
New Prayers:
**Wesley's mother is back in the hospital. Now the Dr.'s think she has a steph infection. She has had such a rough road and many setbacks, please say a prayer for her.
**I have a dear friend, Christin that is pregnant. She is having some heart issues and is on complete bedrest. She goes to the heart Dr. on Friday. She needs our prayers. She has other children and this is very hard on her.
Kyra has been doing pretty well this week. She is having bowel and bladder problems. We are not for sure if this is Chiari related or something else. I feel like I still have so many unanswered questions and this is not because I did not ask. It is because the Dr. did not fully answer. I really want to try a Dr. in Okla City. I can not help but worry for her future holds. Thats where God comes in. I have to leave that to him. For the time being, I feel like we are doing the right thing. I have questioned myself for sure. We have a whole new "normal". Everyday is something new. Wesley is hurting or Kyra is hurting. Or both! It breaks my heart: Blake and Haley will say. "If daddy and Kyra feel good can we do this today". Our life has changed before our eyes.
I think how awesome it would be if a cure could be found. Some sort of magic that would make them both well and no need for brain surgery. I think how I could make that happen. That thought is crazy. I can not take on the world, but I can try in someway. I am working on that. Do not feel like I am very far, but I am trying.
I have never heard back from my job opportunity. Not surprised at all. It was not meant to be. It would had been 40 plus hours and I think God knows what I need to be doing. I am on the sub list, so I will continue to do some subbing and see what happens.
Update on Prayer List:
**My aunt husband Bobby. He is out of the hospital. He does have brain cancer and will be starting treatments. He has a long road and really needs our prayers.
**Wesley's aunts mother, Choweta. She had her neck and back surgery and now is in a different hospital doing rehab. She needs our prayers as well. She has a very long road.
New Prayers:
**Wesley's mother is back in the hospital. Now the Dr.'s think she has a steph infection. She has had such a rough road and many setbacks, please say a prayer for her.
**I have a dear friend, Christin that is pregnant. She is having some heart issues and is on complete bedrest. She goes to the heart Dr. on Friday. She needs our prayers. She has other children and this is very hard on her.
Monday, February 1, 2010
Another Stressful Day!!
Ready for her MRI
Kyra is such a trooper. She smiled the whole time. Even when they were putting her to sleep. Ugh. Brings tears to my eyes when they put her to sleep. She did fine. She was pretty drunk afterwards. It was so funny. She was smiling and laughing like a drunk person.
After the MRI we went to the surgeon. The good news is the MRI showed nothing new. Nothing bad that we did not already know. She has Chiari and thats that. He wants to do surgery. She will most likely (very high chance), she will continue getting worse. He said we can just think about it and watch her and go from there. We have a year and a half before she starts school, if we wanted to do it before then. Right now she is just having head and neck aches a few times a week. If it gets worse we know what we need to do.
Of course we did not mark surgery down. We left and talked. We feel that we are going to wait on surgery for now. We also are thinking of getting a second opionin in Oklahoma City. I will continue with my journal and watch her very closely.
We are ok. It is just hard. I am sad that she has to live with this and that she could get worse or she could stay the same. The unknown is hard. It is upsetting that there is no cure and that I know she will have to have surgery someday. It is hard that Wesley is still sick. It is hard that he will never be the same. And it is hard that they both have to live with this disease.
God is amazing though. I will never give up. God is with us. I have been praying for comfort in our decision and I feel like I have it. I know what we need to do shall she get worse. I know what we need to do to provide her comfort. One day at a time!!
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