Thanksgiving Luncheon

I did go back home on Friday for a few hours. I could not miss the Thanksgiving Luncheon for the little girls at their school.
Here are some photos. I had such a good time. My mom went with us and the food was amazing.

Tomorrow Maybe the Day

We maybe going home tomorrow. They will send him home with medication and maybe a Pick-Line in his arm to continue medication. We are just ready to be home. The kids miss us bad. We miss home.
I went today and met my good friend Amy half way and picked Haley up she is staying with us tonight. She really wanted to see her dad.
She has such an upbeat attitude, she has brought his spirits up and made him laugh.
There relationship is amazing and I am glad. I want my girls to have that with their dad.
But, anyhow tomorrow maybe the day.
It feels like we have been here for a month. But, you know as we walk the halls, I just praise God that Wesley is still with us. That he just has an infection and he will be alright. Not everyone at this hospital will be.
I know Wesley is always going to have problems, since there is no cure for his disease, and I know Kyra could get worse, but I just have to hold on to my faith. We are nothing without it.
It is hard for Wesley to see that right now, can you blame him. But I have to keep my faith and hope that it helps him in some way.
Trust me and my good friends know, there are days that I really struggle with keeping my faith. It is hard to understand. But, I ask myself how and the world I do what all I do and I keep my strength. That strength is coming from God. It is so amazing!! That brings me back to reality, of course my friends bring me back from time to time too. I am not perfect by any means. I have bad days a lot, but each time this happens, I am amazed at the strength that me and my children have.

Progress

Well he is on his 5th day. There is "hope" that tomorrow he may get to go home. I am not holding my breathe, because he still has a long ways to go. He has made some progress, but very slow.
This has been one of the worst stays, well it does not beat the 14 day stay at Baylor, but he has been so sick this time.
I have stayed pretty caught up with my job, not for sure how I have done that, but I have.
The kids have done pretty well, it seems to have been a little harder on them this time around. It happened so fast and they have been switched with more then one person this time. But, I feel like when we get back, everything will work itself back out. They are out of school this week, so thats good.
A good friend is actually going to bring Haley down today. She wants to see her dad and stay a while.
We are not for sure what the future holds for Wesley. We really appreciate all the prayers.
I do truely believe that God has a plan, somedays I do not understand why this has to be part of the plan, but we have to hold on to our faith; without it we have nothing.
I ask that our main prayers are for Wesley's faith and of course health. He is starting to get really down. After three years of this can you blame him? Lets pray for him!!

No Change

The doctors have decided to try IV medication and try to prevent from doing another surgery. So far he is no better. Today has been rough. I am worn out, I some how managed to also work 8 hours today from the hospital. One day at a time. Will see what the doctors say in the morning.
I plan to try and go home to see the kids tomorrow and get a real shower, we will see if it happens.

Back in Hospital

I think I have used that title before. I remember the last time we were here about a month ago, I really thought it would be for the last time. I remember walking the halls thinking we would never see this hall again. Such a nice hospital and such sweet caring staff.
Why did I really think we would never be back; I just felt like surely with the shunt gone, being treated for his infection, what else could go wrong?
Here we are again!!
Since the last time we got home Wesley was being treated for staff infection. All seemed to be going well at first. After he finished his last round of medication he started getting the bad headaches back again and just felt terrible. Throwing up, etc. Then about a week ago his head started leaking fluid again. He went back to doctor and they started him on more medication. He has continued to get worse. Very sick and more leaking.
He was admitted into the hospital today. Tests are being ran and we do not know much more yet. The doctors are thinking that the infection is back or has never left. They are also going to do a spinal tap to make sure he is not making to much CSF fluid again. The plans right now are to (subject to change, ha) surgery in the morning to cut him back open and clean the infection spot out and then depending on what tests show we will see hopefully exactly what is going on and if something else needs to be done.
I will update as I can.

**God is not the cause of any suffering in this world, Satan is! To blame God for evil is foolish, because it actually causes us to follow the one who IS truly responsible for pain and problems.
Romans 8:18: "For I consider that the sufferings of this present time are not worth being compared with the glory that is about to be revealed ...to us!