Chiari Malformation (pronounced key-ARE-ee) is a condition in which brain tissue protrudes into your spinal canal. It occurs when part of your skull is abnormally small or misshaped, pressing on your brain and forcing it downward.
Our New Life- Chiari Malformation
In July 2008 our lives changed forever. Wesley was diagnosed with Chiari Malformation, a rare brain disease. He had decompression brain surgery in July 2008. In August 2008 he had a complication from the surgery and had to have a shunt placed in his brain. He has had four shunt revisions. He has been in the ER more then we can count and has had countless other procedures done. He lives in pain everyday. We now have just learned that our four year old daugther Kyra has Chiari. We are so saddened, but we have faith in God that he will get us through this. Thank you for visiting our blog and praying for our family.
