WOW. It has been two months since I have posted. I am sorry for that. Life has been, well, CRAZY. I have missed blogging and I am back. I will try to get everyone caught up and then we will move forward :)
I started typing this a week ago and have never got to finish. So as I type this tonight, I am sitting in the ER with Wesley.
I had decided to take a break from blogging a few months ago, one because I have been so busy, but I really do miss it. I just kind of fault like all I did was complain and give bad news updates on Wesley.
Over the past few months I have changed my mind somewhat. I have gotten many complaints, that I have not been blogging :) So I am back to blogging and promise to be better about it this time.
So here is the honest truth. Life has been rough for the two months that I have not been blogging, rough. Wesley is not doing well. This disease is just horrible, horrible. Because with this disease you are just in the middle. There is not a cure and there is just not a lot that can be done. There is not a happy medium. He will go through a good time and then he will be right back bad again. Over the past few weeks things have taken a turn for the worse. He is back throwing up and having headaches that he can not handle. We have no clue what to do anymore. Today I spoke with the NY Dr. and he wants to see a CT Scan. Well luckly they are running one tonight in the ER so I can send a copy to him. He also gave us the name of a new Dr. that is closer that he wants him to try and see. He is a neurosurgeon with a lot more experience with Chiari.
I can not even explain unless you have been in our shoes on how we feel. Especially Wesley. I can not even imagine how he feels. I just feel helpless.
I will update throughout the night.