Friday, March 23, 2012

Back to Blogging...

How many times have I said that?!?! Well I mean it this time; for one I do not have the time to update everyone individually. I also some times feel that I bother people with prayer requests, updates, etc. with what seems like ALL THE time. So here we go... Some time this weekend I will get you all caught up with the last few months and some very happy times. But first I will give the CHIARI update. I once said that I would NEVER allow Chiari to rule our lives; but honestly lately thats how it feels. So I have to take deep breaths and not let that happen. This weekend we will get back on track. Wesley--Wesley is not doing well at all. I could talk a lot about that; but this is what we know/think. Wesley goes to the neurosurgeon on Tuesday March 27. Wesley could be retaining fluid again in his brain and if so a shunt will be put back in. A decision will be made Tuesday. Why is this?!---I sure wish we knew, but we do not. I do not know that we ever will. He has Chiari Malformation and is one of the very rare cases that have normous complications and problems. Be praying about March 27. Kyra's yearly MRI is in April. Haley (the oldest) has also been having mirgaines for several months. We are thinking it is hormone related, but because of the Chiari background her doctor wants to get an MRI. Her MRI is Wednesday March 28. Busy week next week. I will be back later for our happy times, but just wanted to give everyone a quick update. I have four kids to care for, a house to clean, and a Job (my job) to work on tonight. Maybe some sleep sometime in there. Blessings!

4 comments:

Unknown said...

Unknown said...

Leslie said...

thanks for the update. Will be praying for you guys tomorrow. I know you are under an un-believeable amount of stress and I am so sorry for the difficulty of this trial. However, I know God has a lesson in all of this for not only your family, but those who are watching you on the sidelines. We are right here if you ever need to vent. You know I understand. Love you friend. Knocking on the doors of Heaven with prayer request for your sweet family.

Leslie

keeping the faith said...

You are all in my prayers,my daughter has Chiari she is going for a MRI soon. I often think of the Apostle Paul and all the sufferings he had and he boasted in them for Christ.We are so blessed to have the Saviour our guide and our friend. I'll be popping into to see how you are all doing
Anne