Monday, February 1, 2010

Another Stressful Day!!

Ready for her MRI

Kyra is such a trooper. She smiled the whole time. Even when they were putting her to sleep. Ugh. Brings tears to my eyes when they put her to sleep. She did fine. She was pretty drunk afterwards. It was so funny. She was smiling and laughing like a drunk person.
After the MRI we went to the surgeon. The good news is the MRI showed nothing new. Nothing bad that we did not already know. She has Chiari and thats that. He wants to do surgery. She will most likely (very high chance), she will continue getting worse. He said we can just think about it and watch her and go from there. We have a year and a half before she starts school, if we wanted to do it before then. Right now she is just having head and neck aches a few times a week. If it gets worse we know what we need to do.
Of course we did not mark surgery down. We left and talked. We feel that we are going to wait on surgery for now. We also are thinking of getting a second opionin in Oklahoma City. I will continue with my journal and watch her very closely.

We are ok. It is just hard. I am sad that she has to live with this and that she could get worse or she could stay the same. The unknown is hard. It is upsetting that there is no cure and that I know she will have to have surgery someday. It is hard that Wesley is still sick. It is hard that he will never be the same. And it is hard that they both have to live with this disease.

God is amazing though. I will never give up. God is with us. I have been praying for comfort in our decision and I feel like I have it. I know what we need to do shall she get worse. I know what we need to do to provide her comfort. One day at a time!!

1 comment:

lace1070 said...

Keeping you and your family in my prayers. Hang in there and take it one day at a time. Hugs ~ Lace